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Date: 07 Jan 2001
Remote Name: 126.96.36.199
I was diagnosed with CDH at 18 and went through the round of visits with Orthopedic surgeons who said they couldn't help me. I had pretty bad artritis and a labral tear that caused my hip to dislocate occcasionally. (Everyday when I was pregnant) They all said to wait to have THR when I was older when I couldn't stand it anymore. Then I met a surgeon at Children's Hospital in Boston who specializes in fixing people like us. At 27 I had a periacetabular osteotomy that redirected my hip socket and after recovery the pain was gone and I walk normally except for the pain in my other hip. It was a miracle. I am 32 now and am preparing for my second surgery to have my other hip done. There are only 4 or 5 surgeons in this country that even do this surgery and I consider myself extremely blessed to have met him and to be given the opportunity to live a relatively pain free life. I also have 2 children and can't even imagine what I'd be missing if I hadn't had this surgery 5 years ago. Look into this type of surgery to see if it might be something that might help you. Good luck.