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From: Fiona - 8th August 2001
Date: 07 Aug 2001
Remote Name: 22.214.171.124
I was born with CDH to my left hip. I had frog plaster and braces as a small child. Everything was normal until 13 when my hip started to wear out. at 16 I had reconstructive surgery which got me through until 33 when it just wore out. I then had a THR which has been fantastic. It has been the most pain free time I can remember. Now at 40 my latest X-rays show that I have extensive osteolysis and will have to have either the whole hip replaced or the cup (they won't know until they open me up). Funny enough, my prosthesis hasn't even loosened slightly. I will have to have extensive bone grafting with wire caging. There is also a possibility that there won't be enough bone stock to do anything with and in that cast I will have to have a girdlestone which is removal of the whole prosthesis. Has anyone had experiences with any of these latest problems. Especially the girdlestone, I would like to know how it feels and how well you can get around. My doctor told me I would probably need a walking stick.